As most of you know, we are spending the weekend in the hospital. Here is how it happened and where we are at as of now. We had been noticing that Zoe had some bruises and we were not sure where they were coming from. She also hadn't been eating well. Tony decided he should take her in Friday morning just to make sure. The doctor thought is was just a lack of vitamin C, but sent them to get blood work done just to check(this was about 10:00 in the morning) The doctor called me at 5:00 that evening saying Zoe's platelet count was very low and we needed to take to the Akron Children's hospital immediately. They were calling ahead for us and they would be expecting us. So we quickly got a diaper bag together and were on the road. It was really strange because this whole time Zoe was perfectly happy and content. We spent a few hours in the E.R. answering many questions and they decided to do another test to see if the numbers had changed at all. Then the worst part of the night happened: getting the IV in and drawing blood. I have to admit I shed a few tears in watching Zoe suffer like that, it was tough. In the test that was done yesterday morning her platelet count was 7, normal is 250-600. The one done last night was 25, so a little better but obviously still too low. They told us they thought is was ITP. They decided to admit her just because the risk of internal bleeding is too high.
We got into our room, met a few doctors and they said they did not want to give her anything yet in hope the level would raise itself through the night. We tried to sleep, but with our nurse in and out and a very small couch as a bed, it wasn't a great night.
They came in early this morning to draw more blood, we found out a couple hours later that the count had gone down to 15. The doctor came in and said they had decided to start a medicine called IVGV. The normal medicine they use would not work for Zoe because her blood type is O- and it only works for those with positive blood types. IVGV does the same thing but can have pretty bad side effect(vomiting, sever headaches, fever, rash) They were in at 10:45 to load her up on Benadryl and Tylenol so try and subdue the possible side effects. At 11:15 they were in to start the IV. This went pretty well, but she was obviously not pumped about it.
The IV was in for 6 hours, she slept over half the time which was great! The time she was awake was a little more difficult. She wasn't feeling terrible, she just wanted to be moving and climbing as always and doing that hooked to an IV is not so easy.
Now the IV is removed and she is as happy as ever. It is strange being in the hospital with some severely ill children and Zoe appears to be totally fine.
They will be in at 6:00 tomorrow morning to draw more blood. We are praying her numbers are up then and we can go home. If they are not we are not sure what the plan will be. It may be just to wait because IVGV can take up to 72 hours to fully work, or they may try another medication.
I have taken a few picture during our time here, but I have no way of getting them on the computer, so you will have to wait to see the pics.
Thanks for all the calls and texts of encouragement. Keep Praying!
2 comments:
Tony, Danielle,& Zoe,
We are praying that the news this morning will be positive! We hope you will be able to go home. We feel way to far away and we wish we could run to be there for you!
Mom & Dad Schnyders
P.S. Happy Mother's Day!
just thinking of you today and thankful Zoe is on the upward climb. Pray for some rest and relaxation.Take care and praying the week goes well for you. love g grandma
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